Mom/Dr. Pauline Whittier Quotes in Everything, Everything
This year is a little harder than the previous. Maybe it’s because I’m eighteen now. Technically, I’m an adult. I should be leaving home, going off to college. My mom should be dreading empty-nest syndrome. But because of SCID, I’m not going anywhere.
I wish again that I could talk to my mom about this. I want to ask her why I get breathless when I think of him. I want to share my giddiness with her. I want to tell her all the funny things Olly says. I want to tell her how I can’t make myself stop thinking about him even though I try. I want to ask her if this is the way she felt about Dad at the beginning.
It feels strange not to talk to my mom about something, someone, who’s becoming so important to me. My mom and I are drifting apart, but not because we’re spending less time together. And not because Olly’s replacing her. We’re drifting apart because for the first time in my life, I have a secret to keep.
Before, I was worried about keeping secrets from her. Now, I’m worried about not being able to have any secrets at all. I know she’s not upset that I bought new clothes. She’s upset that I didn’t ask her opinion and bought them in colors that she didn’t expect. She’s upset with the change she didn’t see coming. I resent and understand it at the same time.
“Can I have my Internet privileges back?” I have to try.
She shakes her head. “Ask me for something else, honey.”
“Please, Mom.”
“It’s better this way. I don’t want you to have a broken heart.”
“Love can’t kill me,” I say, parroting Carla’s words.
“That’s not true,” she says. “Whoever told you that?”
“Of course I regret it. A lot of bad things happened on that trip. And when my mother and father died, I couldn’t go back for the funerals. Rosa doesn’t know anything about where she’s from.” She sighs. “You’re not living if you’re not regretting.”
What am I going to regret? My mind cycles through visions: my mom alone in my white room wondering where everyone she’s ever loved went. My mom alone in a green field staring down at my grave and my dad’s grave and my brother’s grave. My mom dying all alone in that house.
By eighteen years old, other teenagers have separated from their parents. They leave home, have separate lives, make separate memories. But not me. My mom and I have shared the same closed space and breathed the same filtered air for so long that it’s strange being here without her. It’s strange making memories that don’t include her.
“Maybe growing up means disappointing the people we love.”
“How could you do this to yourself? You could’ve died,” she whispers.
She steps closer, hugs a clipboard to her chest. “How could you do this to me? After everything?”
I wish I could undo the last few months of knowing him. I would stay in my room. I would hear the truck beeping next door and I would remain on my white couch in my white room reading my brand-new books. I would remember my past and then I would remember not to repeat it.
He’s not sure which conversation with his mom finally convinced her. It could’ve been because he told her he couldn’t be part of the family anymore if she stayed. Sometimes you have to leave the people who love you the most, he said. Or, he says, it could’ve been when he finally told her about me and about how sick I am and how I was willing to do anything just to live. He says that she thinks I’m brave.
“Mom, it’s OK,” I say. “I didn’t really believe it anyway.”
I don’t think she hears me. “I had to protect you,” she says.
“I know, Mom.” I don’t really want to talk about this anymore. I move back into her arms.
“I had to protect you,” she says into my hair.
And it’s that last “I had to protect you” that makes a part of me go quiet.
[...]
I try to pull away, to see her face, but she holds on tight.
“Because of the circumstances of your upbringing, we’re not sure about the state of your immune system.”
“What does that mean?”
“We think it’s possible that it’s underdeveloped, like an infant’s.”
“An infant?”
“Your immune system hasn’t been exposed to a lifetime of common viruses and bacterial infections. It hasn’t had time to get experience with fighting these infections. It hasn’t had time to get strong.”
Mom/Dr. Pauline Whittier Quotes in Everything, Everything
This year is a little harder than the previous. Maybe it’s because I’m eighteen now. Technically, I’m an adult. I should be leaving home, going off to college. My mom should be dreading empty-nest syndrome. But because of SCID, I’m not going anywhere.
I wish again that I could talk to my mom about this. I want to ask her why I get breathless when I think of him. I want to share my giddiness with her. I want to tell her all the funny things Olly says. I want to tell her how I can’t make myself stop thinking about him even though I try. I want to ask her if this is the way she felt about Dad at the beginning.
It feels strange not to talk to my mom about something, someone, who’s becoming so important to me. My mom and I are drifting apart, but not because we’re spending less time together. And not because Olly’s replacing her. We’re drifting apart because for the first time in my life, I have a secret to keep.
Before, I was worried about keeping secrets from her. Now, I’m worried about not being able to have any secrets at all. I know she’s not upset that I bought new clothes. She’s upset that I didn’t ask her opinion and bought them in colors that she didn’t expect. She’s upset with the change she didn’t see coming. I resent and understand it at the same time.
“Can I have my Internet privileges back?” I have to try.
She shakes her head. “Ask me for something else, honey.”
“Please, Mom.”
“It’s better this way. I don’t want you to have a broken heart.”
“Love can’t kill me,” I say, parroting Carla’s words.
“That’s not true,” she says. “Whoever told you that?”
“Of course I regret it. A lot of bad things happened on that trip. And when my mother and father died, I couldn’t go back for the funerals. Rosa doesn’t know anything about where she’s from.” She sighs. “You’re not living if you’re not regretting.”
What am I going to regret? My mind cycles through visions: my mom alone in my white room wondering where everyone she’s ever loved went. My mom alone in a green field staring down at my grave and my dad’s grave and my brother’s grave. My mom dying all alone in that house.
By eighteen years old, other teenagers have separated from their parents. They leave home, have separate lives, make separate memories. But not me. My mom and I have shared the same closed space and breathed the same filtered air for so long that it’s strange being here without her. It’s strange making memories that don’t include her.
“Maybe growing up means disappointing the people we love.”
“How could you do this to yourself? You could’ve died,” she whispers.
She steps closer, hugs a clipboard to her chest. “How could you do this to me? After everything?”
I wish I could undo the last few months of knowing him. I would stay in my room. I would hear the truck beeping next door and I would remain on my white couch in my white room reading my brand-new books. I would remember my past and then I would remember not to repeat it.
He’s not sure which conversation with his mom finally convinced her. It could’ve been because he told her he couldn’t be part of the family anymore if she stayed. Sometimes you have to leave the people who love you the most, he said. Or, he says, it could’ve been when he finally told her about me and about how sick I am and how I was willing to do anything just to live. He says that she thinks I’m brave.
“Mom, it’s OK,” I say. “I didn’t really believe it anyway.”
I don’t think she hears me. “I had to protect you,” she says.
“I know, Mom.” I don’t really want to talk about this anymore. I move back into her arms.
“I had to protect you,” she says into my hair.
And it’s that last “I had to protect you” that makes a part of me go quiet.
[...]
I try to pull away, to see her face, but she holds on tight.
“Because of the circumstances of your upbringing, we’re not sure about the state of your immune system.”
“What does that mean?”
“We think it’s possible that it’s underdeveloped, like an infant’s.”
“An infant?”
“Your immune system hasn’t been exposed to a lifetime of common viruses and bacterial infections. It hasn’t had time to get experience with fighting these infections. It hasn’t had time to get strong.”